My Autism is real

My Autism is real

This article scratches the surface of that pressing question, “Should I be diagnosed or better not?”.

And that is the first point I’d like to make: A determining factor is how pressing the matter becomes. (unbecoming wordplay: how de-pressing it becomes)
As for me, at a point a few years ago it became so unbearable, I sought diagnosis. But for others, who objectively could easily fit into the criteria, it is most apparently not pressing, if even a question in life at all.

The second big thing about it is about chances and struggles. Two opposing factors, determining a life’s success, though depending on our decisions towards them.
An official diagnosis opens up bureaucratic access to specific sources of help and support, differing mostly in regional availability.
Not every person, doctor or employer around me understands or endorses the changing process, but it all remains a matter of understanding neurodiversity, and we seem not to be quite there yet in society…
To say it in an abstract way: The way I live up to my good will might have changed, but not the good will itself. In a perfect world, there would be no question about that at all.

Being diagnosed does alter only one factor, to have the most official external affirmation of this complex and deeply-rooted neurological phenomenon.
It is one fine thing, to feel truly connected to a group of people you share so much more with than with the majority of those around you, but the rationally strong side of autism doesn’t allow for certainty without the best-known source.
In the past, I only pondered autism when I had bad days, but in my better days I just polished the armour again and tried to fit into whatever shape had a good rulebook to follow.
This might be the strongest point for me. That I lived through years and years of denying myself closure about a pressing struggle, navigating the daily minefield towards my chances, which could never account for the level of difficulty I was living on.

For when you go and get a diagnosis, it becomes a serious responsibility to act true to your nature and to your needs.
Following this responsibility might stir up your surroundings, abolish old habits, destroy perfected routines and holds up a plane mirror in which my own projection of myself didn’t fit the shape I began to see.

All this change hurts and seems to lead me away from what I thought my life should be.
But shouldn’t my life be about evolving, about healthy choices, about taking myself seriously, about being happy, in order to make the people around me happy?

Even though I am going through changes now, my diagnosis helped me to go in the right direction and to never doubt the reality of it. And the reward is a life more true and more direct and more unmasked, just how I like it.

Coming Of Age

Coming Of Age

A secret I couldn’t solve for a long time. How I could be doing grown-up stuff maybe, but how to truly be grown up, a great mystery!
Being a grownup, that’s the job of those who have already grown up. But at a point, a point of dreaded change, I have more in common with them than I used to look up to.

Still, there are goofy grownups, stern grownups, respectable grownups and idiots and role models and walking warning signs and complex individuals paving the ways of society.
As a person of his mask, I am always looking for an ideal, some golden thread to follow. I have mastered many areas of life with this strategy, for better or worse.
But I couldn’t figure out how to be a real grownup, which all humans seem to become eventually.

But then I found it.
The thing that makes a grownup grown up, despite varying age, silliness, vocational position or family configuration.

It is the amount of responsibility one takes on.

It makes sense, that a 16-year-old moving out is more grown up than a 25-year-old stretching their legs under the loving parent’s table and even the same person can be a grownup at work and a child-per-definition at home, in the absence of responsibilities. That said, becoming a parent should result in one of the greatest responsibilities of a human.
Some responsibilities are handed over, some are bestowed upon, some are lying around, some are more and some are less highly regarded.

The universal traits of the average grownup, be it a lack of goofiness, being weirdly organised or thinking twice, are only a reaction to the assumed responsibility, of whichever kind and whichever place.

Responsibilities don’t exclusively affect the outside world, though. There is an oftentimes neglected part of a human’s life, which is better off being graced by immediate responsibility and even care. And that is our inner world, the lifelong journey of discovery into our depths and the response to what we might find.

In the past years, I had much inner evolving to do, in terms of assuming responsibility for what I found out about my inner workings.

A child gets its world built and in turn builds its world.
And thinking of it as world-building, at some point I had to learn to live in the grownup world I’ve been cooking up inside my brain. With the funny twist of not adding that very brain into the grand equation.

Wouldn’t it have been “the responsible thing to do” to plan out that world with the highly specialised perks and inevitable limitations of the autistic brain?
If only I knew… Or did I, in fact? Because I built many parts of my inner and outer surroundings to be autism-fit already.
But do these function with standard requirements of a perceived grownup? Or do they rather fit the characteristics of the life of a child?
To make sense of this mystery time and time again, I like to remind myself that being a grownup has no other determinator than the amount of responsibility resting comfortably on my shoulders.

And my, have I grown evolved lately!

We don’t have to be grown up to reach our potential, we need to take on responsibility of our own potential in order to be grown up.

Hard

Hard

Getting out of bed is hard, making breakfast is hard, remembering appointments is hard, going outside is hard, deciding on a healthy thing for the day is hard, staying vigilant is hard, getting up from the nap is hard, meeting friends is hard, making appointments is hard, writing is hard, taking photos and developing them is hard, watching a movie is hard, taking a shower is hard, playing a story game is hard, remembering to drink water is hard, shopping is hard, breathing is hard.

Highly subjective, indeed! What’s hard –and what isn’t– varies greatly from human experience to human experience.

Often times it seems a great compliment, if you make something look easy. Finishing a video game is seen more honourable, the higher the chosen difficulty was, and driving a manual separates the drivers of the street.

The more we are able, the less things are hard. It will shift with age and experience(s), but for every person, regardless of age, there will always be things that are harder and things that are easier.

Only we are not always too honest about the level of difficulty, be it in order to appear strong in front of others or in front of our very selves.
A rather advanced method, which I haven’t mastered in the slightest yet, is not thinking about the thing at hand at all. This makes the words easy and hard irrelevant, up until the bare physical level.
As getting started with anything is universally harder, we would win over others by downplaying the difficulty: “It’s easy!” and kids might hear this more often than adults.
But we then learn, pretty soon, that the hard way yields more rewards, especially in terms of recognition of others, and they sure will tell us.

On productive ventures, we make every effort to get things to be easier, not harder.
So, looking at our lives as a productive venture, we appear successful by having an easy time wherever we are and whatever we do.
As when we portray hard times, people are having a hard time in turn to relate, to solve or just to be exposed to that hardship. Mind you, this can be rewarding for them in its own way and would likely make it easier for us.
As explored earlier, we might stretch the perception of reality to convince ourselves (and others) of easiness or hardship (I like to stay away from the latter). But if the motives are noble, we are not causing harm by telling tales of ease to those around us.
Up to a point, again.

This is what I always aimed for in life: To have all around me have an easy time. With more or less success, I worked myself into a state of apparent ease, and that’s how people know me.
Until I couldn’t stretch my own perception any further.
Until I noticed the pain of showing ease only to the outside.
Until I wouldn’t have any energy to carry my shiny suit of armour.
Because more things are hard for me than I have been admitting.

One of the hardest things in this process of change is admitting it. Admitting that you indeed have a hard time, even worse: That you had a hard time for a long time. And that you still want to make things easy for everyone involved in your life, just not the way it used to go.

There was a time, when I managed as a well-put-together person, but now even logically trivial things seem to be a challenge daily. Or were they always? Where did I take the ability to do them?

Living an adult life and also being out of energy takes away all cushioning and lets me feel the bumps fully now.
Why are all those things hard? Because I lost the context for them, for the things that drove me internally, the things that are just there, and you don’t even recognize them, until they are missing.
Call it the autism or ‘how I operate’, I have always been thinking in a meticulous way about my reasons, my drives, my motives, my higher goals. I can’t do anything ‘just because’, it is unbearable.

So, was it the tight routines, going to work daily, living inside cosy Hotel Mama™, the leftovers from the energy reserves of past years, or all of them together, that made me hold up my life?
The question for this year is: How do I get my life back in a healthy order and live easier and more honest with myself and with you as the people around me?

Luckily, I have much support, love, compassion and hope still. Those create a promising environment for Sir Oliver to Evolve! ❤️

AI

AI

We are surrounded by this buzzword. It makes everything so much easier, better, faster!

Today, it seems impossible to move forward without artificial intelligence, and vast amounts of natural intelligence are being employed to make artificial intelligence as natural as possible.

But why am I so fascinated by this topic, especially when I usually write about experiencing life with autism?

Because the more I hear about AI and experiment with it myself, the more I see myself reflected in it.

 

Without a clear purpose, AI is useless.

Basically, this is true for any computer program. It is created for a specific reason, and every routine has a purpose—at least in the beginning.

Input and output interfaces are defined, and software only works properly with a well-defined and useful query. The same applies to AI. And the same applies to me.

If I don’t have a reason or motivation to do something specific, or anything at all, I just lie there. Sure, some hardware triggers are built in, but even those are less reliably activated by their software methods than I would like.

 

Without basic programming, AI cannot function.

We imagine AI as something that “thinks on its own”. But even its very existence is based on a clear objective and purpose.
We even get creeped out when AI seems to defy that purpose or acts beyond our understanding. However, it would never do so without some kind of trigger or prior preparation and training that enabled it to adopt such behaviour.

My programming was shaped by my parents, my family, school with its teachers and students, workplaces, friends, travels, and the resulting incremental accumulation of knowledge.
This also includes learning how to learn independently, constantly refining my own software to ensure compatibility with both my own hardware and external interfaces. It often feels like walking a tightrope while balancing it out with paradoxes!

 

Without predefined rules, AI will always take the path of least resistance.

AI can be guided by certain guardrails, either set by the programmer or by the user (if programmed to allow such input), to align its solutions with human preferences as closely as possible.

Otherwise, you might get either overly concise responses in an AI chat or endless dissertations instead of friendly answers in the tone humans prefer.
It seems that the form of the response often carries more weight than the bare content. Of course: It’s how humans understand things, and that’s what matters most.

Also, no AI would lie on its own; lying is a purely human concept. Yet despite the surplus computational effort involved in lying, it somehow seems essential in society. And this is where things become contradictory: the rules of this rule-breaking are often intangible.

 

Without sources, AI would have no foundation. Every piece of knowledge is based on something.

We’re familiar with certain AI services that directly cite their sources when presenting information.

I’m often asked questions like “How do you see the world?” or “How does your daily life work?” or “Why do you do things this way?” For these (and essentially any other question), I’ve been able to provide comprehensive answers for as long as I can remember—because questions beginning with “Why” have always occupied me deeply.

I rely on my internal encyclopedia, which I’ve been feeding throughout my life. Over time, I’ve become increasingly selective about my sources of knowledge, so that I prefer collecting “reliable” information (like car models, cell phones, or geographical facts) over consulting the ever-changing and emotionally warped world of human information.

But I still foster an unabridged fascination with this very unknown and the royal league of human-social skills, of which I’ve managed to build a range of social abilities, thanks to Knigge, Carnegie, and plenty of observation.

And yet, my statements often receive feedback like “not helpful,” prompting me to revise my algorithm. When I get feedback like “everything’s fine” (which happens far more often overall), there’s no reason for further improvement and I can redirect my energy elsewhere.
This explains the annoying focus on “the negative”: positive feedback requires no optimization because everything already works as intended. You see this pattern in many people too.

 

A thing entirely different: human identity and personality

Does AI know how a human feels? How does AI know what kind of response will resonate with someone? How does AI “see” its user?
Can we expect AI to give answers beyond what its sources and communication guidelines dictate?

The programmer feeds the AI, but can a user ever demand that an AI be “itself”?

Lost in Abstraction

Lost in Abstraction

In programming, it’s indispensable; board games would be unthinkable without it; works of art would be literally one-dimensional; and even our world of thoughts could hardly separate one thing from another without it.

My life consists of countless moments where I behaved inappropriately in the face of the prevailing rules and said or did improper things despite feeling to know best.
So why did I not hit bullseye?
Because I got lost in my layers of abstraction and landed in a divergent reality that, up to a point, ticked all the boxes flawlessly but still couldn’t do everything that human intuition covers.

 

What is Abstraction?

Abstraction is a depiction of a thing that reduces that same thing to certain basic features. On one side is the concrete and unambiguous thing, on the other side are the most important features for the current process. Often there are multiple layers of abstraction, so that the features become fewer and more important at the same time.

Before we view and process each and any impulse as uniquely new information, we build up a library of nested compartments that allow us to approach the matter more quickly.
This is not without fault and requires constant adjustment and fine-tuning, but it helps more than it sparks effort. Every human does this with every piece of information naturally; though sometimes more, sometimes less.

 

What Does Abstraction Mean to Me?

This separation, subdivision, and gradual generalization of information suits the rational property of my brain perfectly. As a hyper-feeler, I quickly learned that I can put the often times rather unwelcome emotional reactions in chains this way.

This works well as a customer service employee to not let an outburst of anger get even close to you, but also as a colleague to maintain a pleasant attitude.

So far, I’ve looked at my ability to abstract as something I can do well, and that helps me.
But I realized far too late that I’ve moved further and further away from my actual needs and feelings, just to conform to the rules of my environment.

While I consciously experience and utilise these layers of abstraction, the majority of people seem to operate those intuitively and even automatically.

 

How Does Abstraction Work?

Using the following (abstracted) graphic on emotions in everyday work life, I want to show as an example how layers of abstraction separate my inner self from external human influences and how I imagine that this would work both ways:

 

Isn’t That Great?

It’s super great as long as both parties find each other and the good feeling is based on truth.

While I do operate my layers of abstraction consciously and am always able to derive the truths (even if that usually requires a lot of energy), many living beings around me seem to sort out their feelings much more unfiltrated.

I rarely find myself in the position personally to let my feelings pass unmediated or doing something “just like that.” No, without my layers of abstraction, I’m overwhelmed all too quickly, for which I would need a particularly secure space before I allow it.

This imaging suggests that I’m rarely directly connected to myself, and I can confirm that: It’s an autistic experience.

Behind the multi-layered protective wall, I’m safe from direct contact with the outside world, but due to that it’s not guaranteed that signals reach me as intended, or that my signals are received as I thought out.

 

Now, what is Real?

Real is what we agree on.

Only this can take place at different levels of abstraction. Otherwise, we would just tell our life stories when asked “How are you?” or not be capable of irony and sarcasm at all.

The latter are still denied to autistic people, but that’s only because we haven’t found enough layers of abstraction there yet. Once those are in operation, it’s often everyone else who can’t comprehend our humour and the twisted, inappropriate things.

What helps then are translators or help in the form of siblings, friends, and advocates. Because where true understanding is lived, we will quickly agree, and that feels truly, genuinely, and undisputably good.

An Unexpected Journey

An Unexpected Journey

This year’s resolution was to take myself seriously.

Shortly thereafter, I succumbed to my weary head.

Was this year long? Yes.
Has much happened this year? Yes.
Was I having a good time this year? No, but there were good times in between and a good deal of hope.
Has this year brought change? Yes, more than I could ever think I could handle…
Did Sir Oliver evolve this year? Yes, very much so!

I have much love, support and help to look back on and without that, things would have been much bleaker.

If there is any resolution for 2025 or any stories I want to be telling at the end of the year, may it be about healthy choices, regardless of their scale.